Brooke Eby Obituary, Cause of Death: ALS Advocate and TikTok Creator Dies at 37

Brooke Eby, the social media creator who turned her experience with ALS into a platform for humor, education and advocacy, has died at 37.

The ALS Network announced her death on October 1, 2026, bringing an end to the public journey she had shared with thousands of followers since being diagnosed with amyotrophic lateral sclerosis in 2022.

Known online as “Limpbroozkit,” Eby became widely recognized for speaking openly about the realities of living with ALS. Her videos combined personal experiences with humor, allowing her audience to see both the difficult and ordinary moments of life with a progressive illness.

Brooke Eby Cause of Death

Brooke Eby died following her battle with amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease.

She received her ALS diagnosis in March 2022 at age 33. Over the following four years, she documented the progression of the disease and the increasing challenges it brought to her daily life.

Her later updates showed the effects of ALS on her mobility, breathing, speech and swallowing. Even as those symptoms progressed, Eby continued communicating with her audience and advocating for people affected by the disease.

Turning an ALS Diagnosis Into Advocacy

Eby did more than document her own experience. She used her growing audience to educate people about ALS and connect patients and caregivers with one another.

She founded ALStogether, a community created to help people living with ALS and their caregivers find resources, organizations, experts and others facing similar experiences.

The ALS Network described Eby as an advocate, storyteller and community builder whose work helped bring greater public attention to the realities of ALS.

Her advocacy was recognized in June 2026 when the ALS Network honored her with its Advocate of the Year Award.

Brooke Eby’s Approach to Living With ALS

One of the defining features of Eby’s online presence was her willingness to use humor while discussing an extremely difficult diagnosis.

She frequently shared candid observations about medical treatment, physical limitations and the emotional challenges associated with ALS. In interviews and personal writing, she explained how humor helped her and those around her navigate difficult conversations.

Her approach helped make discussions about ALS more accessible to people who may previously have known little about the disease.

Her Final Years of Sharing

As her condition progressed, Eby continued documenting what was happening to her body.

She discussed declining respiratory capacity in 2025 and later experienced increasingly severe bulbar symptoms affecting her ability to speak and swallow. By September 2026, she had described substantial difficulties communicating verbally.

Despite those limitations, she remained active in sharing her experience and connecting with the ALS community.

Tributes After Her Death

News of Eby’s death prompted tributes from the ALS community, followers and people who had worked with her.

Salesforce CEO Marc Benioff, who worked with Eby during her career at the company, also publicly mourned her passing and remembered her for her positive attitude and advocacy.

The ALS Network likewise honored the impact she had made through her storytelling and efforts to build connections among people affected by ALS.

Brooke Eby’s Legacy

Brooke Eby leaves behind a body of advocacy work that extends beyond her social-media following.

Through ALStogether, her videos, personal essays and public appearances, she helped people better understand what living with ALS could look like while creating a sense of community for others facing the disease.

Her decision to speak openly about the progression of her illness gave followers an unusually personal view of ALS and helped amplify conversations about support, awareness and research.